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Welcome to the National Niemann-Pick Disease Foundation Website

The National Niemann-Pick Disease Foundation supports and promotes research to find treatments and a cure for all types of Niemann-Pick Disease, and we provide support services for individuals and families affected by NPD. Our Vision...is a world where Niemann-Pick Disease is no longer a threat to a full and productive life for patients and their families.

A Message from NNPDF Chair Karen Quandt   
      

NNPDF to Mark 20 Years of Helping Families and Advancing Research
in 2012
Reach for the Stars

Read more about this milestone.

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scientist in lab


Recent
Research into NPC

 

Foundation Newsline

The 2012 NNPDF Annual Meeting will be held in Milwaukee from Friday, February 10 - Sunday, February 12. The Foundation's annual board meetings are open to all members of the NNPDF. 
Please contact the NNPDF Central Office if you are interested in attending.
World Rare Disease Day logo

World Rare Disease Day to be Observed on February 29

World Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year and will be observed on Leap Day,
February 29, 2012.

Visit our World Rare Disease Day page for ideas on how you can raise awareness
of NPD in honor of World Rare Disease Day.

Foundation News:

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International Niemann-Pick Disease Organizations

Research News & Announcements:


Dr Marc Patterson
Mayo Clinic Podcast
featuring Dr Marc Patterson
on Niemann-Pick Type C.

Family Resources & Support:

The Progression of NPC in Two Children's Lives

Adam three years old
Adam Ward, NPC
1/13/90 - 6/4/00
Stacey Vorpahl
Stacey Vorpahl, NPC
1/3/85 - 10/9/04
Mia's NPA Timeline
Mia Walts, NPA
5/31/09 - 10/29/11
Mia Walts

“The National Niemann-Pick Disease Foundation (NNPDF) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. This site is an educational service of the National Niemann-Pick Disease Foundation and is not meant to provide diagnostic or treatment advice. Information contained or suggested on this Web site does not constitute medical advice. For all information related to care, medication or treatment, the NNPDF recommends consulting a physician to determine if information presented is applicable. Please review these additional cautions about medical information provided on the Internet.?

This Web site is a service of the National Niemann-Pick Disease Foundation's Family Services Program, made possible by the financial support of our member families and other generous donors and grantors.  This site receives no government funding, nor does it host or receive funding from advertising or from the display of commercial content. 

This site complies to the HONcode standard for trustworthy health information: verify here.

The National Niemann-Pick Disease Foundation is a 501(c)(3) organization.  Your donations are fully tax-deductible.

Web Site updated  1/10/2012    Donate Now button

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.